| nfk.nl | Dutch Federation of Cancer Patient Organizations | The Dutch Federation of Cancer Patient Organizations (NFK) is an organization dedicated to advocating for the interests of people with cancer, their families, and those with a predisposition to cancer. | Social Organization → Patient Organizations 259 | surveys 73 cancer 631 patient 4082 research 8967 care 12338 | |
| ahckids.nl | AHC Vereniging | The AHC Vereniging is a patient organization providing support to individuals with AHC and their families in the Netherlands and Belgium. | Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 | symposium 339 patient 4082 research 8967 | |
| harteraad.nl | Harteraad | Harteraad is an organization dedicated to advocating for individuals with heart and vascular conditions in the Netherlands. | Social Organization → Patient Organizations 259 Disease & Treatment → Cardiovascular Diseases 91 | heart 534 medication 1164 patient 4082 research 8967 | |
| apneuvereniging.nl | ApneuVereniging | The ApneuVereniging is a patient association aiming to improve knowledge about sleep apnea among the public and professionals. | Sleep Disorders → Sleep Apnea 14 Social Organization → Patient Organizations 259 | sleep apnea 44 forum 1362 association 8562 research 8967 member 10154 | |
| trombosestichting.nl | Trombosestichting Nederland | The Trombosestichting Nederland provides information, funds research, and encourages donations to prevent and combat thrombosis. | Social Organization → Patient Organizations 259 Disease & Treatment → Cardiovascular Diseases 91 | thrombosis 14 pass 92 petition 223 brochure 1642 donation 5110 research 8967 | |
| hemoned.nl | Stichting HemoNED | The website of Stichting HemoNED is a register for patients with hemophilia and related conditions in the Netherlands. | Social Organization → Patient Organizations 259 Essential → Health 91589 | register 362 patient 4082 data 5872 research 8967 | |
| pdsb.nl | PDSB | The Prikkelbare Darm Syndroom Belangenorganisatie (PDSB) provides information, support, and a platform for individuals with Irritable Bowel Syndrome (IBS) and their families. | Social Organization → Patient Organizations 259 Gastrointestinal Disorders → Irritable Bowel Syndrome 26 | ibs 26 diet 747 test 769 research 8967 treatment 21203 | |
| parkinson-vereniging.nl | Parkinson Association | The Parkinson Association provides information, support, and activities for people with Parkinson's disease and their families. | Social Organization → Patient Organizations 259 Neurology → Parkinson’s Disease 98 | parkinson 120 autonomy 155 cafe 1622 research 8967 member 10154 care 12338 | |
| epilepsie.nl | EpilepsieNL | EpilepsieNL is an organization dedicated to improving the lives of people with epilepsy and their families by providing information, support, and research funding. | Social Organization → Patient Organizations 259 Neurology → Epilepsy 22 | epilepsy 26 donation 5110 volunteer 8367 research 8967 | |
| huntington.nl | Huntington Association | The Huntington Association is an organization dedicated to improving care and research into the disease of Huntington's. | Social Organization → Patient Organizations 259 Diseases → Neurological Diseases 21 | donation 5110 newsletter 6504 research 8967 membership 10442 care 12338 | |
| duchenne.nl | Duchenne Parent Project | The Duchenne Parent Project is an organization dedicated to research, awareness, and support for young boys with Duchenne muscular dystrophy. | Conditions → Neurological Conditions 20 Social Services → Welfare 1001 | duchenne 21 medication 1164 research 8967 event 45199 | |
| mevereniging.nl | ME Vereniging Nederland | The ME Vereniging Nederland is the national patient organization for people with myalgic encephalomyelitis (ME) in the Netherlands. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | i 11 guideline 344 advocacy 357 patient 4082 donation 5110 research 8967 | |
| tourette.nl | Stichting Gilles de la Tourette | The Stichting Gilles de la Tourette website provides information, support, and contact opportunities for individuals with Tourette, their families, and professionals. | Social Organization → Patient Organizations 259 Anatomy & Systems → Neurology 1340 | diagnosis 1490 research 8967 treatment 21203 | |
| fahrpatientenvereniging.nl | Fahr Patient Association Netherlands | The Fahr Patient Association Netherlands is an organization dedicated to advocating for patients and their families affected by Fahr’s disease, and contributing to research and the association’s operations. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | disease 285 patient 4082 donation 5110 newsletter 6504 community 7931 research 8967 | |
| patientervaringsverhalen.nl | Patient Experiences | The website provides a collection of patient and caregiver experiences, aimed at improving healthcare and supporting research. | Social Organization → Patient Organizations 259 Research → Research Methods 55 | caregiver 1167 patient 4082 collection 7566 research 8967 care 12338 | |
| angelmansyndroom.nl | Vereniging Angelman Syndroom Nederland | The website of the Vereniging Angelman Syndroom Nederland (vASN) provides information and support related to the Angelman syndrome. | Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 | research 8967 membership 10442 event 45199 | Gelderland → Apeldoorn 6996 |
| huntingtonoostachterhoek.nl | Stichting Huntington Oost Achterhoek | The Stichting Huntington Oost Achterhoek is a foundation dedicated to advocating for individuals affected by Huntington's disease and their families. | Diseases → Neurological Diseases 21 Disease & Treatment → Neurological Disorders 100 | foundation 6678 research 8967 event 45199 | |
| stichtingslapeloosheid.nl | Stichting Slapeloosheid | The website of Stichting Slapeloosheid provides information and support for individuals experiencing chronic insomnia, advocating for improved care and recognition for this condition. | Social Organization → Patient Organizations 259 Hygiene & Environmental Factors → Sleep 419 | insomnia 31 donation 5110 volunteer 8367 research 8967 book 11396 care 12338 | |
| rett.nl | Dutch Rett Syndrome Association | The Dutch Rett Syndrome Association provides information, support, and a platform for individuals with Rett syndrome and their families in the Netherlands. | Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 | association 8562 research 8967 | |
| mecvs.nl | MECVS Netherlands | The MECVS Netherlands website provides information and support for individuals with ME/CFS, their families, and healthcare providers. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | trajectory 556 webinar 870 research 8967 | |
| me-cvsvereniging.nl | ME/cvs Association | The website of the ME/cvs Association provides information about the chronic illness ME/cvs, including diagnoses, treatments, patient stories, news, research, and peer support. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | patient 4082 research 8967 membership 10442 | |
| ataxie.nl | Ataxie Vereniging Nederland | The website of the Ataxie Vereniging Nederland (Ataxia Association Netherlands) provides information and support for individuals with cerebellar ataxia, their families, and healthcare professionals. | Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 | healthcare professionals 235 association 8562 research 8967 | |
| longkankernederland.nl | Longkanker Nederland | Longkanker Nederland is a patient organization providing support to patients, families, and bereaved individuals dealing with lung cancer. | Social Organization → Patient Organizations 259 Diseases → Cancer 546 | lung cancer 11 healthcare provider 474 patient 4082 research 8967 | |
| aangeborenhartafwijking.nl | Patient Association for Congenital Heart Defects | The Patient Association for Congenital Heart Defects (PAH) provides support and information for individuals with congenital heart defects and their families. | Social Organization → Patient Organizations 259 Anatomy & Systems → Heart 53 | peers 89 family 6462 research 8967 care 12338 treatment 21203 | |
| vasculitis.nl | Vasculitis Stichting | The Vasculitis Stichting provides information and support to patients and their families with primary forms of vasculitis. | Social Organization → Patient Organizations 259 Diseases → Autoimmune Diseases 31 | organ 633 medication 1164 patient 4082 research 8967 | |
| oscarnederland.nl | OSCAR Nederland | OSCAR Nederland is a patient organization dedicated to advocating for the interests of carriers and patients with sickle cell disease and thalassemia. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | donate 77 research 8967 | |
| vlinderkind.nl | Stichting Vlinderkind | The website of Stichting Vlinderkind aims to raise funds for research into Epidermolysis Bullosa (EB) and to increase awareness of this rare skin condition. | Cancer → Brain Tumors 11 Disease & Treatment → Rare Diseases 229 | umcg 25 donation 5110 research 8967 | |
| stichtingafasienederland.nl | Stichting Afasie Nederland | The Stichting Afasie Nederland provides support and information for people with aphasia and their families. | Social Organization → Patient Organizations 259 Conditions → Neurological Conditions 20 | aphasia 31 society 1376 donation 5110 foundation 6678 research 8967 | |
| lewy.nl | Lewy.nl | The website Lewy.nl provides information about Lewy body dementia, facilitates contact between patients and caregivers, and supports scientific research. | Social Organization → Patient Organizations 259 Neurology → Dementia 509 | forum 1362 patient 4082 research 8967 | |
| ncv.nl | Dutch Coeliac Association | The Dutch Coeliac Association (NCV) strives to make the lives of people who need to eat gluten-free more enjoyable. | Social Organization → Patient Organizations 259 Disease & Treatment → Conditions 174 | dietician 56 gluten-free 156 volunteer 8367 research 8967 membership 10442 | The Hague → Leidschenveen-Ypenburg 395 |
| stomavereniging.nl | Stoma Association | The Stoma Association provides support, information, and a platform for individuals with a stoma, their families, and caregivers. The aim is to promote good stoma care and increase awareness surrounding living with a stoma. | Social Organization → Patient Organizations 259 | stoma 20 research 8967 membership 10442 event 45199 | Eindhoven → Woensel-North 176 |
| puntvoorparkinson.nl | Punt voor Parkinson | Punt voor Parkinson is an organization that provides all care for people with Parkinson's disease or parkinsonism in one location. | Social Organization → Patient Organizations 259 Neurology → Parkinson’s Disease 98 | parkinson 120 healthcare professionals 235 research 8967 care 12338 treatment 21203 | Overijssel → Twente 2578 |
| poly-artrose.nl | P-AL | The P-AL is a national arthritis association dedicated to supporting its members through information gathering, education, advocacy, and peer support. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | arthritis 51 board 3438 research 8967 member 10154 education 13471 | |
| netneckanker.nl | Stichting NETNECkanker | The NETNECkanker website provides information and support for patients and families affected by neuro-endocrine tumors (NET) and neuro-endocrine carcinoma (NEC). | Social Organization → Patient Organizations 259 Diseases → Cancer 546 | net 107 foundation 6678 research 8967 treatment 21203 | |
| laposa.nl | Laposa | The website Laposa is a national patient and elderly association dedicated to individuals with craniofacial conditions, providing information, support, and a platform for contact. | Social Organization → Patient Organizations 259 Social Services → Seniors 822 | condition 425 patient 4082 research 8967 news 15293 event 45199 | |
| cardiomyopathie-onderzoek.nl | Stichting Cardiomyopathie Onderzoek Nederland | Cardiomyopathie Onderzoek Nederland is a national foundation dedicated to researching cardiomyopathy and supporting patients, their families, and healthcare professionals. | Social Organization → Patient Organizations 259 Disease & Treatment → Cardiovascular Diseases 91 | genetics 104 hospital 560 patient 4082 research 8967 | |
| hme-mo.nl | HME-MO vereniging Nederland | The HME-MO Vereniging Nederland is an organization dedicated to supporting individuals with the rare condition of HME-MO and promoting scientific research. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | mobility 1264 pain 1919 research 8967 member 10154 | |
| nederlandsehoofdpijnvereniging.nl | Dutch Headache Association | The Dutch Headache Association (NHV) is an organization focused on headache research, advice, and support for patients and specialists. | Social Organization → Patient Organizations 259 Neurology → Headache 109 | headache 182 publication 2018 association 8562 research 8967 member 10154 | |
| grinsyndroom.nl | Stichting GRIN syndroom | The Stichting GRIN syndroom is a patient organization that connects people with a GRIN mutation and their families (parents, brothers and sisters, doctors, and researchers) in the Netherlands and Belgium, providing support and information. | Social Organization → Patient Organizations 259 Anatomy & Systems → Neurology 1340 | mutation 27 patient 4082 research 8967 | |
| pxe.nl | PXE Nederland | The PXE Nederland website is an initiative focused on funding research into the rare disease PXE. | Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 | supermarket 406 fund 1063 patient 4082 donation 5110 research 8967 | |
| pitthopkins.nl | Stichting Pitt Hopkins Syndroom | The Stichting Pitt Hopkins Syndroom is an organization dedicated to uniting information, promoting research, and advocating for the interests of families and professionals dealing with the Pitt-Hopkins syndrome. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | syndrome 21 stichting 481 parent 4318 research 8967 | |
| reumanijmegen.nl | Reumapatiëntenvereniging Nijmegen e.o. | The Reumapatiëntenvereniging Nijmegen e.o. (Rheumatism Patients Association Nijmegen area) is an organization providing support, information, and social opportunities for people with rheumatism and their families. The website serves as an information source and platform for activities. | Social Organization → Patient Organizations 259 | movement program 39 rheumatism 219 research 8967 membership 10442 | Nijmegen → Nijmegen-Nieuw-West 58 |
| p-l-s.nl | Stichting PLS | The Stichting PLS aims to improve and maintain the quality of life and care for patients with primary lateral sclerosis (PLS) through fundraising, sponsorship, and scientific research. | Conditions → Neurological Conditions 20 Social Issues → Social Organization 13315 | disease 285 aid 427 patient 4082 therapy 7448 research 8967 | |
| mastocytose.nl | Mastocytose Vereniging Nederland | The Mastocytose Vereniging Nederland website provides information, support, and networking opportunities for individuals affected by mastocytosis and their families. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | association 8562 research 8967 member 10154 | |
| actievoorduchenne.nl | actievoorduchenne.nl | The website, Actie voor Duchenne, is a platform for organizing and supporting campaigns to aid children and men with Duchenne muscular dystrophy. | Social Organization → Patient Organizations 259 Disease & Treatment → Disease Management 35 | cyclist 135 electronics 971 fund 1063 campaign 3428 research 8967 event 45199 | |
| cmycml.nl | cmyCML | cmyCML is a platform providing information, guidance, and self-help resources for patients, caregivers, and healthcare professionals with chronic myeloid leukemia (CML). | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | pgo 10 medication 1164 forum 1362 research 8967 | |
| pompeexpertisecentrum.nl | Spierziekten Centrum Nederland | The Pompe Expertisecentrum provides expert advice and information about Pompe disease for patients and healthcare professionals. | Social Organization → Patient Organizations 259 Diseases → Neurological Diseases 21 | healthcare professionals 235 patient 4082 research 8967 treatment 21203 | South-Holland → Rotterdam 25048 |
| xlh-vereniging.nl | XLH Vereniging Nederland | The XLH Vereniging Nederland is a patient association dedicated to advocating for the interests of individuals with X-linked hypophosphatemia and their families. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | patient 4082 donation 5110 research 8967 membership 10442 news 15293 | |
| gbsexpertisecentrum.nl | gbsexpertisecentrum | The GBS Expertisecentrum provides information, support, and expertise regarding Guillain-Barré syndrome (GBS) for patients, healthcare providers, and researchers. | Social Organization → Patient Organizations 259 Anatomy & Systems → Neurology 1340 | question 2261 patient 4082 research 8967 treatment 21203 | South-Holland → Rotterdam 25048 |
| horstingstuit-foundation.nl | Horstingstuit Foundation | The Horstingtuit Foundation finances research into rare and under-recognized diseases. | Social Organization → Patient Organizations 259 Social Services → Welfare 1001 | institution 245 disease 285 donation 5110 foundation 6678 research 8967 | Hof van Twente → Markelo 399 |
| stichtingpibo.nl | Stichting PIBO | Stichting PIBO is a non-profit organization dedicated to improving the diagnosis and treatment of the rare lung disease PIBO. | Disease & Treatment → Lung Diseases 14 Disease & Treatment → Cardiovascular Diseases 91 | airways 13 diagnosis 1490 donation 5110 research 8967 treatment 21203 | |
| netwerkzorgnederland.nl | ParkinsonNet | The website of ParkinsonNet presents information about the 'Netwerkzorg – a world to win' project, which researched network care approaches in the Netherlands. | Research → Healthcare Research 18 Social Services → Welfare 1001 | care network 13 guideline 344 research 8967 | |
| med-sed.nl | Vereniging Med-Sed | Vereniging Med-Sed is a patient association supporting individuals with MED and SED and their families. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | advocacy 357 association 8562 research 8967 | |
| vriendvanmst.nl | Stichting Vrienden van Medisch Spectrum Twente | Friends of MST is a foundation dedicated to supporting patient facilities and projects that fall outside of the hospital budget, aiming to improve care in Twente. | Charities → Fundraising 1005 Social Organization → Patient Organizations 259 | donation 5110 research 8967 | |
| stop-apneu-non-diagnose.nl | Stop Apneu Non Diagnose | The website provides information about the issue of non-diagnosis and misdiagnosis of sleep apnea in the Netherlands. | Pediatric & Child Health → Sleep Problems 266 | sleep apnea 44 guideline 344 netherlands 1376 research 8967 | |
| effectengroeiremming.nl | Stichting Effecten Groeiremming | The website of Stichting Effecten Groeiremming is an interest organization focused on women who were prescribed growth-inhibiting medication at a young age and later experience adverse effects. | Social Organization → Patient Organizations 259 Research → Medical Research 384 | peer support 68 radar 105 complaint 6479 research 8967 | |
| weshare2care.nl | Stichting Share2Care | Share2Care is a non-profit foundation that involves patients in research and healthcare innovation. | Social Organization → Patient Organizations 259 Entrepreneurship → Social Entrepreneurship 311 | impact 926 insights 976 patient 4082 research 8967 care 12338 | |
| kankerpatientenorganisatienederland.nl | Kankerpatiënten Organisatie Nederland | KON – Kankerpatiënten Organisatie Nederland is a non-profit organization providing information, peer support, self-sufficiency resources, advocacy, and caregiver support to cancer patients and their families. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | peer support 68 self-sufficiency 295 advocacy 357 cancer 631 research 8967 | |
| wasmh.nl | WASMH - PV Foundation and Patient Association | The website WASMH - PV Foundation and Patient Association strives for the legalization of medicinal hemp oil and supports sick people and animals. | Social Organization → Patient Organizations 259 Cannabis Products → Cannabis 195 | thc 27 legalization 36 cbd 237 patient 4082 research 8967 | |
| sclerodermiefonds.nl | Sclerodermie Fonds | The Sclerodermie Fonds website provides information and support for patients, families, and the public regarding scleroderma, a rare autoimmune disease, and promotes research and awareness. | Social Organization → Patient Organizations 259 Body & Movement → Rheumatology 44 | disease 285 donation 5110 foundation 6678 research 8967 | |
| alslimburg.nl | Stichting ALS Limburg | Stichting ALS Limburg is an organization dedicated to research and support for individuals with ALS and their families. | Charities → Fundraising 1005 Neurological Disorders → ALS 12 | als 45 sponsorship 2686 patient 4082 research 8967 | Limburg → Venray 1601 |
| elsfranssenfonds.nl | Stichting Els Franssen | The Stichting Els Franssen is a foundation that provides financial support to patients and institutions in Limburg, with the aim of promoting the well-being of people. | Social Organization → Patient Organizations 259 Social Services → Welfare 1001 | living environment 177 medication 1164 patient 4082 research 8967 treatment 21203 | Netherlands → Limburg 31909 |